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|Length: 182 pages||Word Wise: Enabled||Enhanced Typesetting: Enabled|
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Top Customer Reviews
Being a person who lives with Vascular Ehlers Danlos Syndrome (vEDS) myself, I was eager to read this book and see how it was portrayed. Although this is a fictional book, I was very happy with the realistic portrayal of the lives surrounding someone diagnosed with vEDS. It shared the emotions of the person with the diagnosis as well as the emotions of the close friends and family members who support the person living with this diagnosis. It fairly represented the disbelief, anger, sadness and fear that a person goes through when receiving this diagnosis. Although this book was not a biography for any one specific person, it certainly could be many people's story who live with vEDS in their lives somehow. There were situations in the story that brought tears to my eyes, and situations that made me very happy. I appreciate the author taking the time to write a story that can create more awareness to the community about what it is like to live with vEDS or to be a friend or family member of the person living with vEDS.
I highly recommend taking the time to read this book!
This would be a great read for those teenagers who are struggling with a diagnosis and for their family members. Those who have been personally touched in one way or another by Vascular Ehlers-Danlos Syndrome (vEDS) or any rare disorder. It's a raw look at the true ups and downs of life and what you have to do to overcome and continue on to live life to the fullest...no matter what circumstances are put in our path. I believe whoever reads it will be able to gain strength and learn one of the most important lessons in life...love, live and laugh.
I have been personally affected by his rare disorder so it was a very emotional read on so many different levels for me. I laughed, felt many different raw emotions and I even cried. I think the author nailed all the pertinent issues, the feelings, emotions, advice and symptoms of vEDS, perfectly. And...
"The gift of knowledge"... I think we all wish we could be given this gift. I know I did!
Thank you for writing this beautiful, enlightening book. And bringing awareness and education to Vascular Ehlers-Danlos Syndrome (vEDS)