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Reviving The Broken Marionette: Treatments For Cfs/Me And Fibromyalgia Paperback – August 14, 2011

4.9 out of 5 stars 7 customer reviews

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Editorial Reviews

From the Back Cover

No matter what your doctors tell you, there is hope.

Millions of people struggle with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and fibromyalgia. Most doctors do not really understand these illnesses and the enormous impact they have on the patient's life. Many of them would not think twice about telling the patient there's nothing they can do.

Luckily, this time the doctors are wrong. There are no miracle cures, but both CFS/ME and fibromyalgia can be effectively treated with numerous therapies, which do not have focus on just isolated symptoms like pain, insomnia or depression.

Reviviving the Broken Marionette features

* Over 250 pharmaceuticals that can be used to treat CFS/ME and fibromyalgia
* Possible side effects, contraindications and drug interactions
* International availability and price range of each medication
* Considerations for surgery and vaccinations
* Over 1,000 references
* A glossary and index

Reviving the Broken Marionette is the most comprehensive and up to date reference ever published about the treatment of CFS/ME and fibromyalgia. It provides the latest medical information in a manner that _you_ can understand. Maija Haavisto is a Finnish journalist, medical writer and patient activist. She maintains the only Finnish website on CFS/ME. Firm belief in medicine together with being "sick and tired" of the lack of knowledge of doctors inspired her to write this book. "Doctors should be there to help patients, not make their life even more difficult." She is convinced there is plenty we can do to help our doctors help us better.

About the Author

Maija Haavisto is a 24-year old journalist, medical writer and patient activist from Helsinki, Finland. She has been sick with CFS/ME since 2000. From an originally mild illness she deteroriated into miserable shape over the years, losing most of her mobility and cognitive function. In-depth medical knowledge has enabled her to choose medications with which she has regained most of her lost functionality. Haavisto is confident this book will help other patients understand that their illness is treatable, no matter how severe it is or what symptoms they have.
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Product Details

  • Paperback: 346 pages
  • Publisher: lulu.com (August 14, 2011)
  • Language: English
  • ISBN-10: 1409203352
  • ISBN-13: 978-1409203353
  • Product Dimensions: 6 x 0.9 x 9 inches
  • Shipping Weight: 1.3 pounds (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (7 customer reviews)
  • Amazon Best Sellers Rank: #1,290,486 in Books (See Top 100 in Books)

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Top Customer Reviews

By Cort R. Johnson on February 13, 2011
Format: Paperback Verified Purchase
Another treatment book I thought.......Dr. Teitlebaum's books had pretty comprehensively covered the waterfront for me on that end. What more could a patient authored book offer? It turns out - a lot.

Maija Haavisto is a Finnish writer with CFS who's health was declining rapidly when she found a drug, low-dose Naltrexone. (LDN), that stopped the progression of her illness and improved many of her symptoms. (She used a draft of the book to convince her physician to try it.).

"Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia" focuses on the pharmaceutical drugs used to treat CFS. First she explains how each class of drug works and why it might be applicable. Then she covers how each drug works, study or physician information on each, it's possible side effects, cost and availability in different countries.

She clearly has a lot of contacts as she uncovers treatment after treatment option I had never heard of. A particularly important and now pretty much neglected source is the work of Dr. Jay Goldstein. Her chapter on Nootropics - "smart drugs" that skirt the boundary between stimulants and mood altering drugs (and are usually quite well tolerated) was eye-opening. Did you know Dr. Goldstein used ergoloid , a strong anti-oxidant that improves oxygenation to the brain and is used to treat migraine and senile dementia to good effect in some of this patients. Or that vinpocetine, which has anticonvulsant properties and improves brain microcirculation might be able to increase physical endurance in CFS.

Besides covering all the antimicrobrials, antimicrobrials, antivirals, beta blockers, corticosteroids, cholinesterase inhibitors, etc., etc. used in CFS she has an impressive section on experimental therapies.
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Format: Paperback
I developed CFS and fibromyalgia while living in the midwestern US, and the doctors I spoke with were less than helpful. They had few treatment options (which did not work for me), and threw up their hands saying there was nothing they could do, sending me on my way.

Not only was this a great overview of the many potential treatments out there, but it's empowering to see how much thought and research the author has put into the book. This is a great resource to recommend to doctors (if I could afford it, I'd send a copy of this to every doctor who was less than helpful), and a great springboard for more detailed research yourself about specific treatments you think will work for you.

There's a serious lack of literature about CFS treatments, and a serious focus on antidepressant-only treatments for fibromyalgia (at least where I've lived), and this book fills a void.
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although I do not agree with everything, and I am confused about the continual denying of cfs. in the usa, we always have to have our own name.. politics is hiding the science, but it is neurological as well as me. I prefer the ME name, because it puts the brain, pain, and infection in the face.

this book is one I will carry with me, written very well, I would have put more words in the index, but one can always find a way to improve or change a book that is so comprehensive as this one.

i took it with me to my interview with a new PCP. She is not aware at all of the ME DX and how the hallmark of post exeryional myailse presents in so many different ways.

I hope I can write as well as she did, Dr Foley, Green Valley AZ USA
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A wonderfully useful and comprehensive review of medications & treatments for CFS and fibromyalgia, both traditional and alternative. The book includes all drug product names (which often differ depending on which country you are in) so you can be sure to be able to look yours up. Written by a science journo with CFS you can be sure that if it's been done, it's in there. Thanks Maija for taking the time to write this terrific reference.
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