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Schuyler's Monster: A Father's Journey with His Wordless Daughter by [Rummel-Hudson, Robert]
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4.5 out of 5 stars 59 customer reviews

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Length: 292 pages Word Wise: Enabled Enhanced Typesetting: Enabled
Page Flip: Enabled

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Editorial Reviews

From Publishers Weekly

The monster in this heartfelt memoir is polymicrogyria, an extremely rare brain malformation that, in the case of Rummel-Hudson's daughter Schuyler, has completely impaired her ability to speak. During her first three years, as her parents seek to find out what hidden monster is causing her wordlessness, they endure two years of questions and tests and at least one unsatisfactory diagnosis. But while Rummel-Hudson initially rages at God for giving Schuyler a life that would never ever be what we'd imagined it to be, his depiction of her next four years becomes a study not only in Schuyler's vivacious and resilient personality, but also in the redeeming power of understanding and a stupid blind father's love. As he describes how Schuyler eagerly takes to various forms of communication, such as basic sign language and an alternative and augmentative communication device that provides whole words she can type to express her thoughts, Rummel-Hudson effectively and compassionately shows how the gentle strangeness about her, like a visitor from some realm where no one spoke but everyone laughed, leads him to understand that she was the one teaching me how to make my way in this new world. (Feb.)
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Review

“A gripping explication, shot through with equal parts horror and hope, of how parenthood can turn ordinary people into passionate advocates.” - Neal Pollack, author of Alternadad

"Robert Rummel-Hudson is brave enough to reveal the damage the discovery of his child's condition did to his marriage and to his own sense of self. He manages to repair some of the damage through close involvement with Schuyler and vigorous campaigning on her behalf. His memoir is honest, often painful and deeply personal."  - Charlotte Moore, author of George & Sam

"The book is engaging and honest - I'm sure it will help many parents who are struggling to find the most loving way to help their children who have "issues." - Dana Buchman, designer, author of A Special Education: One Family's Journey Through the Maze of Learning Disabilities

“Rummel-Hudson’s memoir offers a moving account of his and wife Julie’s unrelenting efforts to give their buoyant little girl a way to communicate.” – People magazine

Relating the battle for his exceptional daughter with nimble wit, ardor and considerable descriptive ability, Rummel-Hudson has evolved from blogger to author.” – Kirkus

“…A study not only in Schuyler’s vivacious and resilient personality, but also in the redeeming power of understanding…” – Publishers Weekly

“This memoir, full of fear and rage and disappointment and acceptance and advocacy and ferocious love, offers plenty of touchstones for parents who have dealt with diagnoses that are infuriatingly wrong or frighteningly right….” – Terri Mauro, author of The Everything Parent’s Guide to Sensory Integration Disorder

“Rummel-Hudson chronicles, with disarming frankness, the experience of parenting a child no one knows how to help.” – Brain, Child

“…This story will both compel and inspire readers on their own self-journey.” – Texas Family magazine

“We all play the hand that we are dealt in life. Knowing that there are many people like Robert, Julie and Schuyler who play their difficult hand with grit, tenacity and love makes this world a much better place in which to live.” – The Citizen, Auburn, New York

 


Product details

  • File Size: 3229 KB
  • Print Length: 292 pages
  • Publisher: St. Martin's Press; Reprint edition (February 19, 2008)
  • Publication Date: February 19, 2008
  • Sold by: Macmillan
  • Language: English
  • ASIN: B00FOA4Z7U
  • Text-to-Speech: Enabled
  • X-Ray:
  • Word Wise: Enabled
  • Lending: Not Enabled
  • Screen Reader: Supported
  • Enhanced Typesetting: Enabled
  • Amazon Best Sellers Rank: #241,118 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
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