- Paperback: 304 pages
- Publisher: Grove Press; Reprint edition (October 1, 2008)
- Language: English
- ISBN-10: 9780802143877
- ISBN-13: 978-0802143877
- ASIN: 0802143873
- Product Dimensions: 5.5 x 1 x 8.2 inches
- Shipping Weight: 10.4 ounces (View shipping rates and policies)
- Average Customer Review: 132 customer reviews
- Amazon Best Sellers Rank: #617,415 in Books (See Top 100 in Books)
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Sick Girl Paperback – October 1, 2008
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"Truly compelling, Sick Girl sucked me in from the get-go. Amy Silverstein's story is amazing and inspiring."
"Spectacular ... Heart transplant patients live along the jagged edges of the abyss that most mortals fear. By bravely peeking over the edge, Amy Silverstein shares with us the brutal reality of being a 'survivor.'"
"Silverstein is an inspired storyteller. Her engaging language and sharp insight make Sick Girl both compelling and moving. Few of us undergo a heart transplant at twenty-four, but we can recognize our own stories in this incisive, unflinching look at life, love, and extraordinary courage."
"Amy Silverstein is not an easy patient, with good reason. She has lived nineteen long years with a transplanted heart, much longer than any doctor could have predicted. And she has, arguably, done more with a transplanted heart than anyone else, including the publication of this remarkable book. It documents her fears, frustrations, anger, and perseverance. She recognizes that the world expects a simpering bundle of gratitude. In her compelling memoir, Sick Girl, Amy delivers a searing insight into the battle to stay alive. And yet, there is also love and humor, and a radiant courage."
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I have congestive heart failure and my doctor is suggesting getting a heart transplant.
I was searching the web for both the good and the bad of heart transplantation.
All I could find was the good stories. It seemed like all the information out there from various hospitals and their paid shills was only promoting transplantation. Then I found Amy's book and read it. I got the real cold hard truth of what it's like to live day to day post transplant.
I now am of the persuasion that I don't want to go through with it. Quality of life is just as important as life itself.
It amazes me reading all the posts from people who say she's on a pity-party or ungrateful or what have you.
These people are PERPETUATING THE PROBLEM of having to put on a smiley face all the time when living with a terrible illness.
It's perfectly human and OK to tell it like it is.
Kudos to Amy for being the brave soul that she is.
Unfortunately, there are two sides to every story, and some people only want to hear the happy side.
She states from the outset that she's not the grateful patient so many people think she should be.
People who have been fortunate to not have to deal with major health care issues DON'T know what it's like...Amy writes a personally revealing book and not only expresses her anger and frustration...she also illustrates why...
...people get frustrated with their doctors (docs and health care professionals assume patients know a lot more than they do...and, for the most part, aren't getting paid to educate patients -- unfortunately!
What's particularly illustrative was toward the later part of the book where she starts talking about doctors "punting"...what she doesn't address, and which is particularly germaine in our costly health care system is just how much each of these specialists are getting paid to NOT KNOW. It's also surprising there isn't more cross-specialist consultation going on...which would ease the patient frustration as well as reduce unnecessary health care expenditures...
What's clear is, Amy comes from an upper middle class (at the very least) family and background...there's no mention of the actual costs of her health care (either what's paid by insurance, or what's not covered)...which suggests she's been most fortunate in that health care concern...
...if she'd have that concern in addition, she would likely have been at least twice as angry.
As a former health care practitioner, and one very concerned about the ongoing healthcare debates in the U.S., I found this an excellent addition to the volumes of "patient" literature -- helpful for health care practitioners in having a better understanding why their patients may not be ebullient fountains fo gratitude.
With waves of emotion as I gulped your words. I couldn't read fast enough.
With a jarring sense of deja vu because I've walked this journey with my soul friend. She became sick at your exact age, suddenly and violently with one cough, while we were at work.
She was totally disabled and bedridden for two years while waiting and waiting and waiting.
In 1993, she became the 41st double lung transplant recipient at Stanford. And became a spokesperson for TRIO.
The immunosuppressants destroyed her kidneys, and she left us exactly 10 years to the day of her transplant.
Thank you for your beautifully written book. You touched my heart.
I would highly recommend this book to readers who like: memoirs, stories about health issues, the desire to learn more about being a person with a transplanted organ and well written books.