Top positive review
3,090 people found this helpful
From a teen-age survivor
on April 9, 2013
I am not quite finished with the book, but so far, I think it is very well written. It covers a topic that is difficult to talk about and is often avoided. It has been challenging for me to get through; however, I feel like I should add my perspective. I was diagnosed with cancer at 10. I am now 15 years old and a teen-age cancer survivor. I am a volunteer and advocate for pediatric cancer awareness.
This book has gotten negative reviews based on several points:
1) This is from another reviewer: "The characters are not believable. They do not speak like teenagers. They do not even handle situations like teenagers do. So many interactions between Gus and Hazel are interactions which, plain and simple, just would not happen between real, emotional, scared, awkward, virgin teenagers, let alone ones with cancer who have been socially cut off for much of their lives."
*My point-of-view: Have you spent time with any of us? They are believable as teen-age cancer patients/survivors. We may look like teen-agers, but in our heads, we are not. We have had to face our own mortality and make choices we should never have to make. It makes us grow up...quickly. Most of us do not act or speak like teen-agers because that is no longer how we think. After treatment, many of us find the things most teens (and sometimes adults) are worried about are trivial. Society cuts us off, but we are not cut off from each other. These types of interactions do happen. And, it is emotional and scary, but we learn to tell it like it is, without the normal fluff and awkwardness. We find 'normal' where we can and try to live every single day we have because we know that time is an illusion.
2) The parents are not real, not deep characters, and they do not have their own identities.
*My point-of-view: I have seen my own parents (and siblings) and the parents of other friends struggle with this. Many times, they do not have their own identities anymore. Every single minute is spent trying to make it to the next! They try to keep the family together and functioning, in spite of the effects of treatment, fevers and midnight trips to the emergency room, 3 weeks of the month spent in isolation, jobs in jeopardy, birthdays and holidays interrupted, not to mention talks that parents never want to have with their child. I've talked to my mom about this. This becomes their identity. My mom said their jobs become about doing whatever it takes, travelling all over the country (which is very common), researching new studies, and new medicines, all to help us survive and thrive with grace and dignity. It is also their job to prepare, if treatments don't work, to help us die with just as much grace and dignity.
I hope everyone can read this with an open mind and an open heart. Then, reach out to the patients and survivors in your communities. They are wise beyond their years, funny, brave and inspiring.