A good documentary into what life CAN be like with Lyme disease. Hopefully this spreads awareness to others who know nothing of the struggles of this disease - not only physically/mentally, but within the healthcare system. Interesting to hear the propaganda regarding the CDC/IDSA/insurance companies and potentially covering up the severity of Lyme cases. I don't tend to fall into propaganda-type movies, but I am currently open to reading and hearing all sides of this Lyme debate. I probably wouldn't believe the propaganda if I didn't live it myself.
I have had Lyme disease for 14 years before being officially diagnosed. I was misdiagnosed that entire time, and once I put the pieces together and thought it may be Lyme, it was extremely difficult to get anyone to believe me about my symptoms...I was constantly told "How can someone have so many things wrong with them, without being thought of as a hypochondriac?". My primary physician told me I was negative (even though my blood test came back positive, there weren't "enough" bands to be considered CDC positive). I couldn't even get in to see an Infectious Disease doctor...when I tried to schedule an appointment, the receptionist talked to me on the phone like I was crazy and said that I needed a script from my primary (even though I didn't need referrals to see a specialist). My allergist rolled his eyes when I asked if Lyme disease could be causing my allergies (just like every other doc I bring it up to). It wasn't even a thought when my ENT had to perform sinus surgery to clear out the chronic infection. The heart palpitations I experienced turned out to be "normal" when examined by my cardiologist, who told me to "lay off the caffeine". The carpal tunnel was just "carpal tunnel-like" according to the neuro specialist. I should see OMT about my bad back and TMJ. Perhaps get a sleep study, or tested for a NARCOLEPSY gene, due to my chronic fatigue. My hypothyroidism was being managed by my endocrinologist, and I've had to keep switching medications/doses since I didn't feel any of them seemed to be WORKING. Seriously? Connect the dots! If insurance is worried about covering all the people who have Lyme disease CORRECTLY...I bet that would still be cheaper than treating all of us who are getting treated for our seemingly random symptoms! I'm sure hundreds of thousands of dollars have been spent on me as a guinea pig up to this point. I could have been treated 14 years ago, perhaps with an extended dose of Doxy... and potentially be cured and lived a normal life. But I didn't have "enough bands".
I currently drive two hours away to see a Lyme-literate doctor. Who correctly diagnosed me with chronic Lyme, and I am now I am thriving under general treatment and food/life-style changes. It didn't take much, other than for someone to believe in me and be willing to work with me to formulate a treatment plan. Hopefully people watch this video and understand. It's definitely something I will be looking more into!
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