This is a remarkable story and will hopefully make many people question their assumptions about the cognitive abilities of a nonspeaking autistic person. For far too long, intellectual disability has been assumed to be present in students who can't speak; when really, what they can't do is complete standardized intelligence testing. The test does not exist that accommodates students who have coexisting speech and motor planning disabilities; and yet we continue to - as the saying goes - judge a fish by its ability to climb a tree.
But what if there was a way to accommodate both motor planning and speech, and in turn tap into the true communication of the individual? That is the experience this book describes. It’s brilliant in its simplicity, a story told with the evident passion of a dedicated father in partnership with the newfound voice of a son that has been released from his life of silence, and with it, the associated misunderstanding of his autism.
The use of letter boards for nonspeaking individuals has been around since the 1920’s. Stephen Hawking used a letter board in the 1960’s, and there’s even a fictional letter board user in the TV show “Breaking Bad.” The only difference between those examples, and this one? They weren’t autistic. The conventional assumption has always been that autistic people who can’t speak lack cognitive abilities. And yet, that’s not in the diagnostic criteria for autism… it’s just taken for granted. What this book shows, and what I also believe, is that we can’t make that assumption. What a wonderful thing to be wrong about!
And yet, there are detractors. They are the people who have told us for decades that there is no hope for our autistic kids, and that we are just deluded parents in denial of certain realities, willing to hand over any amount of money for just a taste of the snake oil called hope. They say that instead, we should rely on ABA, “the most evidence-based practice available for autism treatment.” They don’t respond to the claims made by the adult autistic community, who were subjected to ABA as children, and are now recovering from the psychological trauma of being shaped into someone else’s abstract idea of normalcy. They will tell you to look up “ideomotor response” or “Clever Hans effect” and will say that spelling on a letter board is an example of those. They won’t tell you about Ole Ivar Lovaas, one of the pioneers of ABA, and his use of electric shocks and slapping of children as a means of gender-variant conversion therapy. They won’t admit that their use of aversives and rewards looks eerily similar to dog training. And at no point, will ABA acknowledge the role of human dignity, neurological diversity, self-advocacy, or personal agency of the autistic person. No, the ABA community is too busy saving us parents from ourselves to pay any attention to questioning their long-held assumptions.
But I’m not going to resolve this complicated issue in a book review. I’m only adding it here because there will predictably be some of these criticisms found in other reviews. I would just leave it at introducing the idea of “least dangerous assumption,” as coined by special education researcher Anne Donnellan in 1984. It teaches that in the absence of conclusive data, educational decisions should be based on assumptions which, if later proved to be incorrect, will have the least dangerous effect on the student. So with that in mind, let’s say we choose to believe in the abilities of our nonspeaking peers and we begin helping them to establish communication. If our efforts end up as futile, we have lost our time and effort. If, on the other hand, we believe they are incapable of communication, and we later learn it had been possible all along? Well, then we’ve lost a person. Which would be the greater loss? I know how I would answer.
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Underestimated: An Autism Miracle (Children’s Health Defense) Hardcover – March 23, 2021
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J. B. Handley
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Jamison Handley
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Print length192 pages
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LanguageEnglish
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PublisherSkyhorse
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Publication dateMarch 23, 2021
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Dimensions6 x 0.9 x 9 inches
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ISBN-101510766367
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ISBN-13978-1510766365
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Editorial Reviews
Review
“The Handley family’s mission to save their son, Jamie, is the greatest love story ever told. The power of love, determination and strength creates yet another paradigm shift in autism therapies that will affect the masses on a global scale. Jamie Handley is a real-life superhero and his story brings hope to all of humanity. Life, for many, will never be the same after reading this book. Thank you JB, Jamie, and the whole Handley family for sharing your miraculous journey.”
—Jenny McCarthy, author of Louder Than Words; coauthor of Healing and Preventing Autism
“I’m both dumbstruck by and grateful for the dogged determination of Jamison Handley and his loving family. With this book he shows the world that a debilitated, nonspeaking youth severely disabled by full blown autism can transform into a gifted and wry individual with humor and wisdom to share with the world. This book is at once an exhilarating joyride and a pointed critique of the catastrophic failures of the mainstream mental health orthodoxies. Jamison, the trailblazer, shows the world that nonspeakers with autism have extraordinary potential and cognitive gifts. Millions more like Jamison are awaiting their chance to be heard.”
—Robert F. Kennedy, Jr., author of American Values: Lessons I Learned from My Family, Crimes Against Nature, and The Riverkeepers
“A breathtaking story of one family’s fight to overcome adversity. Get out your handkerchiefs. It’s impossible to read this book without crying happy tears."
—Jennifer Margulis, PhD, author of Your Baby, Your Way and coauthor of the #1 Amazon bestseller, The Vaccine-Friendly Plan (with Paul Thomas, MD)
“Jamison’s journey is the most powerful testimony of God’s grace. As a parent of an autistic adult this book above all books teaches us the most valuable lesson—they are brilliant, they understand, they feel, they hurt, they are human beings, and given a chance—this chance—they will contribute to society in a way we never believed possible.”
—Polly Tommey, founder, Autism Media Channel; author of Autism: A Practical Guide to Improving Your Child’s Quality of Life
"The world has a new hero, and his name is Jamie Handley. If you want your heart to be touched, your mind blown, and your view of the possible to be forever changed, this is the book for you. Read it and get to work making the world a better place."
—Kent Heckenlively, coauthor of Plague of Corruption; author of Inoculated: How Science Lost its Soul in Autism
“The Handleys thought they'd exhausted every option to help their son speak. Then they discovered that Jamie's communication was intact but trapped—until a method called S2C opened the flood gates of his social, emotional and academic prowess. Underestimated: An Autism Miracle will help bring this life-changing communication method into the forefront of treatment options.”
—Kim Rossi, author of All I Can Handle: I'm No Mother Teresa
“I had the honor and privilege of reading an advanced copy of Underestimated. I didn't think anything could make me forget about the current chaos we are living in—but this book, this journey, did. In fact, this book puts everything in perspective. There is nothing more important than our children. Beginning in December 2019, when the rest of the world was beginning to lock down, Jamison "Jamie" Handley began the journey of being unlocked. While fear and hiding and anxiety swept the world, Jamie stepped into a world of joy and communication and freedom for the first time in his life. I read the book in one sitting, with tears rolling and grinning ear-to-ear. This book is about love, and hope, and kindness, and forgiveness. It is about never giving up on anyone and treating everyone with respect and kindness. Right now, half of the US thinks the other half is crazy. But we are judging each other with a wall between us, trapped inside our own perspectives. We cannot hear each other. We cannot hear or see the love and hopes and intelligence in others with different perspectives and it is causing raging meltdowns. The inability to communicate and to feel understood is the most frustrating emotion there is. We look at "others" and don't understand them and so label them crazy, stupid, dangerous. The world judged Jamie Handley with labels, too. Retarded, cognitively impaired, low-functioning, volatile. But he was just a boy with a brilliant mind, a loving heart, understanding everything—everything—happening around him and unable to say so. Until now. This book is not just the journey of one young man, it is a guidebook on how to be hopeful and decent humans, not labeling each other but always seeking ways to communicate."
—Bernadette Pajer, author of Professor Bradshaw Mysteries
"When a child is unable to speak, it is easy to assume that he or she lacks the capacity to think in terms of language. Jamie Handley has shown the world that this is a false assumption. This book reveals a stunning intellectual capacity hiding in a mind that is disabled only in the ability to transfer the language code to the articulators of the mouth. The book is also a heartfelt story of a family that would not give up on a child who appeared to be severely disabled, and the devotion of certain special education professionals who believed in Jamie and believed in the controversial and unusual program he adopted. What is mind-boggling is to think of all the other Jamie Handleys stuck in an institution somewhere, forgotten by society but able to think deep thoughts and share them with the world, when provided with proper tools that can allow them to communicate nonverbally.”
—Stephanie Seneff, senior research scientist, MIT Computer Science and Artificial Intelligence Laboratory
—Jenny McCarthy, author of Louder Than Words; coauthor of Healing and Preventing Autism
“I’m both dumbstruck by and grateful for the dogged determination of Jamison Handley and his loving family. With this book he shows the world that a debilitated, nonspeaking youth severely disabled by full blown autism can transform into a gifted and wry individual with humor and wisdom to share with the world. This book is at once an exhilarating joyride and a pointed critique of the catastrophic failures of the mainstream mental health orthodoxies. Jamison, the trailblazer, shows the world that nonspeakers with autism have extraordinary potential and cognitive gifts. Millions more like Jamison are awaiting their chance to be heard.”
—Robert F. Kennedy, Jr., author of American Values: Lessons I Learned from My Family, Crimes Against Nature, and The Riverkeepers
“A breathtaking story of one family’s fight to overcome adversity. Get out your handkerchiefs. It’s impossible to read this book without crying happy tears."
—Jennifer Margulis, PhD, author of Your Baby, Your Way and coauthor of the #1 Amazon bestseller, The Vaccine-Friendly Plan (with Paul Thomas, MD)
“Jamison’s journey is the most powerful testimony of God’s grace. As a parent of an autistic adult this book above all books teaches us the most valuable lesson—they are brilliant, they understand, they feel, they hurt, they are human beings, and given a chance—this chance—they will contribute to society in a way we never believed possible.”
—Polly Tommey, founder, Autism Media Channel; author of Autism: A Practical Guide to Improving Your Child’s Quality of Life
"The world has a new hero, and his name is Jamie Handley. If you want your heart to be touched, your mind blown, and your view of the possible to be forever changed, this is the book for you. Read it and get to work making the world a better place."
—Kent Heckenlively, coauthor of Plague of Corruption; author of Inoculated: How Science Lost its Soul in Autism
“The Handleys thought they'd exhausted every option to help their son speak. Then they discovered that Jamie's communication was intact but trapped—until a method called S2C opened the flood gates of his social, emotional and academic prowess. Underestimated: An Autism Miracle will help bring this life-changing communication method into the forefront of treatment options.”
—Kim Rossi, author of All I Can Handle: I'm No Mother Teresa
“I had the honor and privilege of reading an advanced copy of Underestimated. I didn't think anything could make me forget about the current chaos we are living in—but this book, this journey, did. In fact, this book puts everything in perspective. There is nothing more important than our children. Beginning in December 2019, when the rest of the world was beginning to lock down, Jamison "Jamie" Handley began the journey of being unlocked. While fear and hiding and anxiety swept the world, Jamie stepped into a world of joy and communication and freedom for the first time in his life. I read the book in one sitting, with tears rolling and grinning ear-to-ear. This book is about love, and hope, and kindness, and forgiveness. It is about never giving up on anyone and treating everyone with respect and kindness. Right now, half of the US thinks the other half is crazy. But we are judging each other with a wall between us, trapped inside our own perspectives. We cannot hear each other. We cannot hear or see the love and hopes and intelligence in others with different perspectives and it is causing raging meltdowns. The inability to communicate and to feel understood is the most frustrating emotion there is. We look at "others" and don't understand them and so label them crazy, stupid, dangerous. The world judged Jamie Handley with labels, too. Retarded, cognitively impaired, low-functioning, volatile. But he was just a boy with a brilliant mind, a loving heart, understanding everything—everything—happening around him and unable to say so. Until now. This book is not just the journey of one young man, it is a guidebook on how to be hopeful and decent humans, not labeling each other but always seeking ways to communicate."
—Bernadette Pajer, author of Professor Bradshaw Mysteries
"When a child is unable to speak, it is easy to assume that he or she lacks the capacity to think in terms of language. Jamie Handley has shown the world that this is a false assumption. This book reveals a stunning intellectual capacity hiding in a mind that is disabled only in the ability to transfer the language code to the articulators of the mouth. The book is also a heartfelt story of a family that would not give up on a child who appeared to be severely disabled, and the devotion of certain special education professionals who believed in Jamie and believed in the controversial and unusual program he adopted. What is mind-boggling is to think of all the other Jamie Handleys stuck in an institution somewhere, forgotten by society but able to think deep thoughts and share them with the world, when provided with proper tools that can allow them to communicate nonverbally.”
—Stephanie Seneff, senior research scientist, MIT Computer Science and Artificial Intelligence Laboratory
About the Author
J.B. Handley is the best-selling author of How to End the Autism Epidemic. Together with his wife Lisa, he founded Generation Rescue, a nonprofit organization dedicated to autism recovery. He and his wife also produced the documentary film Autism Yesterday. J.B. founded Swander Pace Capital, a middle-market private equity firm with more than $1.5 billion under management where he served as managing director for two decades. He is an honors graduate of Stanford University and lives in Portland, Oregon, with Lisa and their three children.
Jamison Handley is an eighteen-year-old nonspeaker who was diagnosed with autism when he was two years old. Thanks to a new communication method called Spelling to Communicate, Jamison is now able to fully communicate and switched from a “life skills” classroom to a regular academic classroom at his high school and will be graduating in 2022. He plans to attend college and study neuroscience. Jamison hopes to inspire others with his story and dedicate his life to advocating for the rights of all nonspeakers. He lives in Portland, Oregon, with his family.
Jamison Handley is an eighteen-year-old nonspeaker who was diagnosed with autism when he was two years old. Thanks to a new communication method called Spelling to Communicate, Jamison is now able to fully communicate and switched from a “life skills” classroom to a regular academic classroom at his high school and will be graduating in 2022. He plans to attend college and study neuroscience. Jamison hopes to inspire others with his story and dedicate his life to advocating for the rights of all nonspeakers. He lives in Portland, Oregon, with his family.
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Product details
- Publisher : Skyhorse (March 23, 2021)
- Language : English
- Hardcover : 192 pages
- ISBN-10 : 1510766367
- ISBN-13 : 978-1510766365
- Item Weight : 12.8 ounces
- Dimensions : 6 x 0.9 x 9 inches
- Best Sellers Rank: #27,993 in Books (See Top 100 in Books)
- Customer Reviews:
Customer reviews
4.9 out of 5 stars
4.9 out of 5
473 global ratings
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Reviewed in the United States on March 23, 2021
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Reviewed in the United States on March 23, 2021
As a parent advocate in Oregon who fights for disabled, non verbal and delayed children it gives me so much joy to know that there’s a beautiful person there and always has been and they just need help to communicate.
The fact that we’ve taken this long to figure this out hurts my heart but I’m seeing the benefits of this immediately and have gotten numerous special Ed and parents of disabled children to be aware of and get this book.
If you’re a speech therapist, please learn S2C and let’s truly understand the beautiful people who are physically impaired in their motor controls to communicate but they are 100% there intellectually and just need help!
I recommend this book to everyone. I also recommend tissues.
Verified Purchase
This may be one of the most emotional yet gratifying books I’ve read in a very long time.
As a parent advocate in Oregon who fights for disabled, non verbal and delayed children it gives me so much joy to know that there’s a beautiful person there and always has been and they just need help to communicate.
The fact that we’ve taken this long to figure this out hurts my heart but I’m seeing the benefits of this immediately and have gotten numerous special Ed and parents of disabled children to be aware of and get this book.
If you’re a speech therapist, please learn S2C and let’s truly understand the beautiful people who are physically impaired in their motor controls to communicate but they are 100% there intellectually and just need help!
I recommend this book to everyone. I also recommend tissues.
As a parent advocate in Oregon who fights for disabled, non verbal and delayed children it gives me so much joy to know that there’s a beautiful person there and always has been and they just need help to communicate.
The fact that we’ve taken this long to figure this out hurts my heart but I’m seeing the benefits of this immediately and have gotten numerous special Ed and parents of disabled children to be aware of and get this book.
If you’re a speech therapist, please learn S2C and let’s truly understand the beautiful people who are physically impaired in their motor controls to communicate but they are 100% there intellectually and just need help!
I recommend this book to everyone. I also recommend tissues.
5.0 out of 5 stars
A non verbal child and adult can communicate!
By Brittania The Great on March 23, 2021
This may be one of the most emotional yet gratifying books I’ve read in a very long time.By Brittania The Great on March 23, 2021
As a parent advocate in Oregon who fights for disabled, non verbal and delayed children it gives me so much joy to know that there’s a beautiful person there and always has been and they just need help to communicate.
The fact that we’ve taken this long to figure this out hurts my heart but I’m seeing the benefits of this immediately and have gotten numerous special Ed and parents of disabled children to be aware of and get this book.
If you’re a speech therapist, please learn S2C and let’s truly understand the beautiful people who are physically impaired in their motor controls to communicate but they are 100% there intellectually and just need help!
I recommend this book to everyone. I also recommend tissues.
Images in this review
59 people found this helpful
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Reviewed in the United States on March 23, 2021
Verified Purchase
I was given an advance copy of this book and was just blown away. The world has a new hero and his name is Jamie Handley, but he's also supported by an entire team of Avengers comprised of his mother, father, siblings, and caring professionals who never stopped trying to reach the brilliant, kind, and caring individual trapped inside.
For those of you unfamiliar with the struggle of non-speakers, it's difficult for the families who care for them, but the greatest tragedy is for those who suffer with this condition, trapped in their own bodies. Using a revolutionary technique called Spelling to Communicate, Jamie's brilliance is unlocked. Prepare to have your mind blown, your heart touched, and your belief about what those with autism are capable of forever changed.
Five stars!
I want the big screen movie, now!!!!
For those of you unfamiliar with the struggle of non-speakers, it's difficult for the families who care for them, but the greatest tragedy is for those who suffer with this condition, trapped in their own bodies. Using a revolutionary technique called Spelling to Communicate, Jamie's brilliance is unlocked. Prepare to have your mind blown, your heart touched, and your belief about what those with autism are capable of forever changed.
Five stars!
I want the big screen movie, now!!!!
51 people found this helpful
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Reviewed in the United States on March 23, 2021
Verified Purchase
I read this book in one sitting, and could not put it down. It’s my very strongest opinion, having been an advocate/activist for autism for nearly 2 decades, that **every single parent** of a non-verbal/low verbal son/daughter with autism, as well as teachers, para educators, SLPs, BCBAs, OT’s, —MUST read this book. It’s a game-changer.
I’ve known the father, JB, for a very long time. I know Jamie’s family tried every imaginable therapy to help their son emerge from the prison of a body that wouldn't cooperate. I’ve had many conversations with the father, sharing stories of tragedy & success. More often than not, those conversations ended with him telling me “I’d do ANYTHING to have a conversation with my son”.
Yet, for all those years, their son Jamie was presumed to be cognitively impaired, mentally retarded, and worse- a “behavioral” problem. Communication was the elusive golden ticket.
A text from a mutual friend changed their life. JB got his wish, and Jamie has shown the world who he really is, since he began his journey with S2C communication.
I cried and rejoiced reading this book, and I know you will too. I also shared their anger, as a fellow parent who’s son was also greatly underestimated by just about everyone. Please read this book.
-Tami, autism mom, Functional Nutritionist, activist, advocate, and most of all, believer & admirer of Jamie.
I’ve known the father, JB, for a very long time. I know Jamie’s family tried every imaginable therapy to help their son emerge from the prison of a body that wouldn't cooperate. I’ve had many conversations with the father, sharing stories of tragedy & success. More often than not, those conversations ended with him telling me “I’d do ANYTHING to have a conversation with my son”.
Yet, for all those years, their son Jamie was presumed to be cognitively impaired, mentally retarded, and worse- a “behavioral” problem. Communication was the elusive golden ticket.
A text from a mutual friend changed their life. JB got his wish, and Jamie has shown the world who he really is, since he began his journey with S2C communication.
I cried and rejoiced reading this book, and I know you will too. I also shared their anger, as a fellow parent who’s son was also greatly underestimated by just about everyone. Please read this book.
-Tami, autism mom, Functional Nutritionist, activist, advocate, and most of all, believer & admirer of Jamie.
46 people found this helpful
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Top reviews from other countries
Ms G. H. Kirby
5.0 out of 5 stars
A very emotional read!
Reviewed in the United Kingdom on March 27, 2021Verified Purchase
Wow! Book arrived yesterday and finished already. Couldn’t put it down. What an emotional rollercoaster. Beautifully written. What a fine young man Jamie is and how lucky to have been born into such a caring and supportive family who have found a system of communication that allows them to connect and know their son. And it was a book that made me feel tremendously sad....I was haunted by the names and faces of non-verbal autistic youngsters that I worked with over a twenty year period and thought how those individuals have been failed. I could see the intelligence in their eyes and feel their frustration during their meltdowns but lacked the tools then to help. I have already posted to all my FB friends, still working with these youngsters, that the need to read this book! I hope Jamie and his dad have set things in motion for greater acknowledgment and understanding of what is possible.
2 people found this helpful
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Yvonne Keene
5.0 out of 5 stars
A must read for any parent of a non verbal child or adult
Reviewed in the United Kingdom on May 10, 2021Verified Purchase
As soon this arrived I spent the day reading it, had me sobbing throughout , very emotional,
Because this is a true portrayal of Jamie and his father’s fight to get the best for him as he was non verbal.
My grandson is non verbal so resonates with me with the fight to get the proper diagnosis and schooling.
A brilliant book gives hope to all non verbal children and adults in their fight to communicate
Because this is a true portrayal of Jamie and his father’s fight to get the best for him as he was non verbal.
My grandson is non verbal so resonates with me with the fight to get the proper diagnosis and schooling.
A brilliant book gives hope to all non verbal children and adults in their fight to communicate
One person found this helpful
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Vick S.
5.0 out of 5 stars
Moved me to tears time and again...
Reviewed in the United Kingdom on August 22, 2021Verified Purchase
Read this in a day (well half of it was night!). Cried my way through it.. have a daughter-in-law who's brother is a non-speaker. Now heading towards 30... what to do? Praying about how to give the parents this book so that it will somehow bless them all. Only S2C training here in England is in Manchester Uni and Barnsley Hospital .. but fortunately that's near them.
John Page
5.0 out of 5 stars
Moving and immensely thought-provoking
Reviewed in the United Kingdom on July 12, 2021Verified Purchase
An eye opening, compelling and hopeful book, written with kindness and love, which takes you on the journey of this highly talented father and highly talented autistic son.
"Autism" is probably an umbrella term for many different conditions. But this book has the potential to change many lives.
"Autism" is probably an umbrella term for many different conditions. But this book has the potential to change many lives.
MRS P.E. FILBY
5.0 out of 5 stars
The facts about autism
Reviewed in the United Kingdom on April 13, 2021Verified Purchase
One of the most amazing TRUE stories I have read in many years. Thought provoking and challenging as to the plight of autistic people.
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The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with AutismPaperback$16.20$16.20FREE Shipping on orders over $25 shipped by AmazonGet it as soon as Thursday, Sep 9
EMF*D: 5G, Wi-Fi & Cell Phones: Hidden Harms and How to Protect YourselfDr. Joseph MercolaHardcover$22.49$22.49FREE Shipping on orders over $25 shipped by AmazonGet it as soon as Thursday, Sep 9




