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Waking Mathilda: A Memoir of Childhood Narcolepsy Kindle Edition
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|Length: 304 pages||Word Wise: Enabled||Enhanced Typesetting: Enabled|
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In 2010, the Crisp family took precautions to protect their youngest daughter from the H1N1 virus, by getting her vaccinated as recommended by European health care officials. Soon after, their daughter began to experience numerous, unexplainable developmental and neurological setbacks: inability to stay asleep at night, difficulty staying awake during the day, falling, difficulty speaking. The Crisps were losing their daughter with each passing day. Through several months of challenges, misdiagnoses, questions of the mother’s and daughter’s sanity, financial troubles, and uncertainty about their future and their daughter’s health, the Crisp family ultimately found an answer to their daughter’s condition—narcolepsy caused by the H1N1 vaccine.
Read this to learn about narcolepsy.
Read this to find hope and not feel alone while facing the life changing diagnosis of a loved one.
Read this to help understand a neighbor, coworker, or friend whose family is weathering an unexpected diagnosis.
Wonderful education in the world of a family, especially, mom, in dealing with a child with Narcolepsy. More people need to read, get educated.
It is one if those invisible disabilities that no one understand or knows how to support. The author is honest, real, sweet, personable, tired.