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Waking Mathilda: A Memoir of Childhood Narcolepsy Paperback – March 10, 2017
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About the Author
Born and raised in London, Claire Crisp practiced as physical therapist in the British National Health Service and in private practice. She went on to teach her three children at home for next decade in Scotland, the US and England. From 2010 onwards Claire has been a full time care-giver to her daughter Mathilda who developed narcolepsy as a result of the H1N1 vaccine. The family moved from their home in England to California, securing treatment for Mathilda at the Stanford Center for Narcolepsy research. She is an award winning advocate for children with Narcolepsy, a speaker and blogger. Her story has been featured in the Daily Mail, the i news and on NPR. Waking Mathilda-- A Memoir of Childhood Narcolepsy is her first book. --This text refers to an out of print or unavailable edition of this title.
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In 2010, the Crisp family took precautions to protect their youngest daughter from the H1N1 virus, by getting her vaccinated as recommended by European health care officials. Soon after, their daughter began to experience numerous, unexplainable developmental and neurological setbacks: inability to stay asleep at night, difficulty staying awake during the day, falling, difficulty speaking. The Crisps were losing their daughter with each passing day. Through several months of challenges, misdiagnoses, questions of the mother’s and daughter’s sanity, financial troubles, and uncertainty about their future and their daughter’s health, the Crisp family ultimately found an answer to their daughter’s condition—narcolepsy caused by the H1N1 vaccine.
Read this to learn about narcolepsy.
Read this to find hope and not feel alone while facing the life changing diagnosis of a loved one.
Read this to help understand a neighbor, coworker, or friend whose family is weathering an unexpected diagnosis.
Such a powerful story. I loved it. For all the books out there to read, an involving narrative that's beautifully written is hard to come by. This book hits all the marks with breathtaking ease. It's fascinating too, considering this author apparently has no prior books to her name. While some stories are just so big they have to be told, and they end up making authors out of ordinary people. Occasionally the storyteller finds a natural gift for serious writing. You see that with this book, with the elegance of its prose, the grace of its voice. By the end you're left moved by the account and longing for more. I hope to see more from Lady Crisp down the road.