Kirkus Review "This is a story more about the power of hope than the wages of Huntington's....Crutcher-Marin writes affectingly about the way her marriage was actually fortified by its precariousness....She also tenderly portrays the plight of his sisters....This is a rare treat--a true story that is as uplifting as it is heartening."
Story Circle Book Reviews "My recommendation? Read this book as if you were looking into a mirror. You will find metaphors for living in the moment, for dropping the need-to-know, and for valuing differences in others. You will find reflections of your own anxieties and likely come away encouraged to "keep on keeping on" with life. While you will learn a great deal about Huntington's Disease along the way, this book has much to offer beyond the boundaries of any disease."
From the Author
I began writing Watching Their Dance
in 2010 after my third sister-in-law, Cindy, died of complications from Huntington's disease. John, her brother and my husband, were deep in complicated grief having lost his entire family to Huntington's, mother, three sisters, grandfather, 3 uncles, cousins, great grandfather and many others. Since I'm a retired healthcare professional, having worked in hospice, I understood complicated grief and began to explore different ways to heal. I knew from working with social workers, grief support group facilitator, that writing was a way to heal the emotional and physical wounds that are an inevitable part of life.
My initial motive in writing the story was to honor my three sisters-in-law, Lora, Marcia and Cindy and to heal my heavy heart. I found by placing words on paper, I could let go of my grief. As I wrote and rewrote the story, over seven years, I realized the book could do much more than just help me. The book could help families struggling with Huntington's disease since it detailed how John and I cared for each sister. Then I had another idea of how to use the book in the fight against Huntington's disease. Since Huntington's is a rare disease, and many people do not know anything about it, the story could heighten awareness and possibly increase donations to Huntington's disease organizations. Then, a couple of years before the book was published, John and I decided that we would donate 100% of the profits to Huntington's disease organization around the world. In the U.S., specifically, Huntington's Disease Society of America (HDSA). It would be our way to give back, help HD families and also contribute to research.
While I was writing the story, I couldn't talk about the book without crying but now when I hold one of my books in my hand, I don't cry because I have healed having shared this story with the world.