Bernadette was born with the biggest disease no one has ever heard of... until now. Watch as she rises from living in obscurity to becoming - in the words of her late father - the face of CMT (Charcot Marie Tooth disease).
John A. Scarduzio, Bernadette Scarduzio, Maria Scarduzo
My granddaughter has Charcot Marie Tooth Syndrome and I wanted to hear how Bernadette coped with the disease. It was heartbreaking to see how much pain it caused her and my heart aches for anyone that has this disease. My granddaughter suffers in many ways being 13 and does not have a lot of friends because she can't be very active not having a lot of stamina. It would be good to have an online support group for those with Charcot Marie and they could communicate with each other for support. I am very grateful for Bernadette doing this movie.
This amazing film about the struggles of a woman (Bernadette) dealing with a debilitating disease will stay with you long after viewing. The film is powerful in it's raw emotion as it shares a very personal glimpse into Bernadette's life; the challenges she faces, her losses and her triumphs. Bernadette suffers from Charcot-Marie-Toothe (CMT) disease, a genetic disease affecting the nerves of the arms and legs, and she is a huge source of inspiration to those within the CMT community and beyond. This engaging documentary is a must-see for all!
Although this movie probably won't win any Oscars or Emmys, it is a real movie about a real disease. I found the movie informative even though I've been battling CMT for 20 plus years. The documentary focuses on a girl with a lifestyle that doesn't adhere to conservative ways or beliefs, but you would have to be pretty narrow minded to let that interfere with the moving story and the movie's depiction of real life. Sometimes life is messy, And it can be even messier fighting CMT. I give the movie 5 stars because it is the first widely distributed movie to really depict this disease that is so common that most people have never heard of. Kudos.
Thank you all for bringing awareness of this disease, especially on such a personal level. I was diagnosed with CMT1a last year at the age of 52 during a physical. Initially, my primary physician after seeing muscle atrophy on my hands, thought I might of had cancer but after extensive testing, CMT1a was the diagnosis. Bernadette, thank you so much for allowing us into your life and educating us on our disease and showing us how to accept it and live life to the fullest!
Loved the documentary without the feel of watching a documentary. I have enjoyed following Bernadette for the last two years and finally took a night to watch the film.My diagnosis has been suggested but not confirmed by genetic testing.I look forward to seeing more an I know angels are guiding all of us. Bernadette is here for a very special purpose.
Thank you Bernadette and family for making this documentary. In my family of 9 siblings, 7 of us have CMT in varying degrees of severity and your story helped me to better understand this disease...your courage and strength is inspiring.