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In a Different Key: The Story of Autism Kindle Edition

4.6 4.6 out of 5 stars 739 ratings

PULITZER PRIZE FINALIST NEW YORK TIMES BESTSELLER “Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism.”—Walter Isaacson, #1 New York Times bestselling author of The Code Breaker
 
“Remarkable . . . A riveting tale about how a seemingly rare childhood disorder became a salient fixture in our cultural landscape.”—The Wall Street Journal (Ten Best Nonfiction Books of the Year)

The inspiration for the PBS documentary, In a Different Key
 
In 1938, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey,
In a Different Key tells the extraordinary story of this often misunderstood condition, from the civil rights battles waged by the families of those who have it to the fierce debates among scientists over how to define and treat it. 
 
Unfolding over decades,
In a Different Key is a beautifully rendered history of people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. 
 
This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many unsuccessful treatments; to stark disagreements about whether scientists should pursue a cure for autism; to compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.

By turns intimate and panoramic,
In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.

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Customer reviews

4.6 out of 5 stars
739 global ratings

Customers say

Customers find the book immensely informative, elucidating, and compassionate. They describe it as a great, captivating, and lively read. Readers praise the writing quality as well-written and skillful. They also find the stories fascinating, interesting, and weaving together individual stories to paint a compound picture.

AI-generated from the text of customer reviews

84 customers mention "Information content"84 positive0 negative

Customers find the book immensely informative, elucidating, and compassionate. They say the case studies are very informative and the authors do a wonderful job of taking so much information and turning it into beautiful, interesting stuff. Readers also mention the book makes history much more readable and accessible.

"...The authors do such a wonderful job of taking so much information and turning it into beautiful and relatable stories...." Read more

"...A great historical read, broad in scope but intimate in its story telling, this book is also about love, respect and dignity...." Read more

"...The case studies were very informative and my heart went out to the families as they struggled to help their children in the early years...." Read more

"Great reading, based on extensive research...." Read more

57 customers mention "Readability"57 positive0 negative

Customers find the book captivating, lively, and fabulous. They say it's well-nuanced and the short chapters make it an engaging read.

"...Thank you for a compelling book, and a wonderful journey." Read more

"This is an extraordinary book. John Donvan is a television correspondent for ABC, and Caren Zucker is a journalist and producer...." Read more

"...Sure taught me a lot. Highly recommended reading. Kevin Thomas Morgan" Read more

"A very well written story of autism. This is a very good book if you are interested in knowing more about the condition, it’s history, and current..." Read more

32 customers mention "Written quality"32 positive0 negative

Customers find the book well-written, with a novel-like readability. They appreciate the skillful manner in which the authors tell the study of autism. Readers also mention that the history of autism is thorough and readable.

"...transitioning from one activity to another. Ryan is very verbal...." Read more

"...This book answers and does so with great writing, research, and depth. It reads like a novel at times and is hard to put down...." Read more

"...The book was well written and drew me in quickly...." Read more

"...This book - brilliantly written and thoroughly researched - is not just for those who know someone with autism but rather for all of us who need to..." Read more

24 customers mention "Story quality"24 positive0 negative

Customers find the stories fascinating, interesting, and comprehensive. They say the book weaves together individual stories to paint a compound picture. Readers also mention the historical perspective and many cases make it a personal story that many people can relate to. Additionally, they describe the book as compelling and engaging.

"...job of taking so much information and turning it into beautiful and relatable stories...." Read more

"...I found the book to be very interesting as well as distressing to learn how these poor children were treated way back when...." Read more

"...the story of autism in 46 fast-paced chapters, presenting detailed accounts of the biographies of the characters: parents, children, psychologists,..." Read more

"...This book was extremely interesting to me because of the background information on the history of changing diagnoses and “treatments” or lack..." Read more

5 customers mention "Heartfelt story"5 positive0 negative

Customers find the story heartfelt and well-researched. They say it's about love, respect, and dignity. Readers also mention the book is about terrible tragedies.

"...read, broad in scope but intimate in its story telling, this book is also about love, respect and dignity...." Read more

"...Such an incredible story of politics, advances, horrible tragedies, love, dedication. A must read for everyone who is human." Read more

"...This is a heart breaking but immensely informative book!" Read more

"Well-researched. Great heart...good stories. Fast paced. A must read if you care about this topic...." Read more

5 customers mention "Pacing"5 positive0 negative

Customers find the pacing of the book balanced, engaging, and moving.

"This book is beautiful, moving and a comfort to anyone with children or family on the spectrum...." Read more

"Balanced engaging and well written. I recommend for other autism parents. Liked the historical perspective and many cases and stories." Read more

"Excellent book on the history of autism. Balanced and well-written. A must-read. I recommend this book to anyone with an interest in autism." Read more

"Moving, informative, a critical read..." Read more

The most comprehensive story of autism ever told.  A GREAT read that I recommend for everyone, not just autism families!!
5 out of 5 stars
The most comprehensive story of autism ever told. A GREAT read that I recommend for everyone, not just autism families!!
I just finished reading this book and feel the need to sing its praises in every online and social media forum I belong to! I am an avid reader, a mother of a 4 year old non-verbal boy with autism and I am also a research scientist who studies the biochemistry and biophysics of eye disease, but I want to recommend this book for EVERYONE to read, not just autism families or scientists. This book is exactly what it claims to be: The Story of Autism. The whole story, from all perspectives. As someone who compiles, analyzes and publishes data constanty for my job, I can't imagine the amount of work and time that went into gathering all of this information let alone the skill it took to weave it together to read like an actually story while somehow managing to be heart warming and compelling at the same time as being historical and scientific. The facts and figures, names and dates, cases (both clinical and court), countries and controversies involved are masterfully and seamlessly woven together in a completely objective and unbiased manner to paint an extremely thorough picture of how the autism diagnosis came to be and how the clinical, social, psychiatric and cultural landscape surrounding autism has evolved over the years, leading to where it is today. This 'compendium on autism', to me, is a beautiful tapestry of real people, real history, activism, research science, biology, psychology, non-profit organizations and government involvement surrounding what is and has become one of the most important medical issues of our time. I want to thank the authors for all of their work and for caring enough about autism to take on such an enormous project and for doing it with such integrity! Speaking as an autism mother, this book made me laugh, made me cry, made me furious, and filled me with joy and intense gratitude for those who went before to pave the way for progress. It left me with a greater desire to be a better mother to my son, to be a better scientist, to be a better advocate and to be a better person. Thank you, sincerely, for what you have done to spread awareness, to disseminate truth, to educate and to chronicle one of the greatest medical journeys in the worlds history. EVERYONE should read this book.Note: I rarely issue 5 stars to anything but this deserves it. Also it might help to know that I was not given this book at a discount or for free. I paid full price for it and listened to it on Audible which I also highly recommend as the narrator does a wonderful job! I am writing this review because the book deserves it, plain and simple. Hope this helps!
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Top reviews from the United States

Reviewed in the United States on November 24, 2016
The world is a better place with this book in it. I am a better person for having read this book.

All of my friends (and myself) question why a 20-year-old with no personal connection to autism would be so interested in this book. Autism has always fascinated me; I don't know why. I do know that this book answered everything I could have ever wanted to know about autism.

If only school textbooks were written like this book. The authors do such a wonderful job of taking so much information and turning it into beautiful and relatable stories. Very rarely did I feel like I was reading a biographical, non-fiction book like the ones I'm used to reading as a result of educational assignments. I think this was strengthened by the fact that the authors have backgrounds in television. They know how to tell a great human narrative.

A few months ago, late on a Saturday night on my college campus, I ran into a group of kids handing out flyers. I was about halfway through this book at the time. I thought to myself, "oh my god who the heck is bothering people at 10pm on a Saturday night." I quickly retracted my negative thoughts when I was handed a flyer about neurodiversity. I struck up a conversation with the girl who handed me the flyer. She revealed that she was on the spectrum. We spoke for 20 minutes about a range of topics from ABA to Asperger's to Neurodiversity. It was enlightening and heartening to see such passion.

As I read the latter half of the book, I frequently thought back to that conversation. I can only imagine the impact this book might have on readers who have much closer connections with people on the spectrum than I do.

The authors do a wonderful job of remaining partial and non-bias in most situation where there's neither a right or wrong to certain sides. I think right now, a very interesting debate that they pose later on in the book is whether or not autism is something to be cured. I don't know if I have an opinion on it, but I do know that I am immensely fascinated in seeing how autism develops in the future. As I grow older, I hope that my financial and professional situations will provide opportunities for me to make a difference within this community.

Thank you for a compelling book, and a wonderful journey.
14 people found this helpful
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Reviewed in the United States on January 31, 2016
"In a Different Key: The Story of Autism" by John Donvan and Caren Zucker chronicles the history of autism from its earliest roots to present day. Donvan and Zucker introduce us to professionals, parents and children with autism, all grappling with defining, redefining, and addressing this complex spectrum of behaviors that overtaken their lives and demanded their attention.

Lorna Wing, noted psychiatrist who first coined the phrase "autism spectrum" wrote, "Nature never draws a line without smudging it.". Indeed, autism is as variable as the people with it... from the completely withdrawn who cannot communicate or function with any amount of independence, to people like my son Ryan (not his real name), diagnosed with Asperger's Syndrome... a high functioning form of autism on the spectrum who is "quirky", but not unable to function in the adult world on his own.

When in the third grade, Ryan was identified as gifted and talented while at the same time being considered for placement in a contained classroom with other special education students because of his poor impulse control and his high anxiety level - particularly when
transitioning from one activity to another. Ryan is very verbal. He is an encyclopedia of knowledge about sharks and dinosaurs, and more recently wrestling and politics. He can speak for hours on these areas of interest, but, much like third grade, makes little or no contact while doing so. He has never learned how to fold into a hug, and has never learned to be gentle in his physicality.

Little did we know back in the day as we searched for a comfortable place for our son in the school system, that we were dealing with a
microcosm of Donvan and Zucker's book; How did this happen? Was it our fault? How do we handle those different from ourselves? When is a quirk a disability? How do we measure success in those differently-abled? And what becomes of those more affected who, unlike Ryan, will never be able to accomplish the tasks of daily living and live independently? What is out there for them? And yet, for those like Ryan, are we overreaching in trying to "cure" what is a simple case of being a little different... a variation of normal? Are we stifling neurodiversity and doing a disservice to those who should not be labeled? These are the issues presented in "In a Different Key".

Donvan and Zucker serve the autism community well in their book. As the mother of a son on the spectrum, I finished the book feeling that not only was Ryan well represented, but his entire family as well. A great historical read, broad in scope but intimate in its story telling, this book is also about love, respect and dignity. The story of Donald Triplett, the first person diagnosed with autism. who the authors found alive and well and living in Mississippi, is a wonderful counterpoint to the lengthy history of autism. As described in their book, Triplett is a "Happy
Man", dividing his time between travelling and playing golf at the age of eighty two. "In a DIfferent Key: The Story of Autism" embraces the human condition. It is relevant to us all.
11 people found this helpful
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Reviewed in the United States on April 28, 2016
I was very interested in learning more about autism as a close family member is showing some signs of this condition. I have not completed the book yet, that is why I only gave a 4 star rating. I found the book to be very interesting as well as distressing to learn how these poor children were treated way back when. The case studies were very informative and my heart went out to the families as they struggled to help their children in the early years.
Thankfully research as brought this condition to the public and medical attention it so deserves. The book has been very informative and I'm anxious to finish the book. I plan on recommending this book to family and friends to make them more aware of this condition.
4 people found this helpful
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Top reviews from other countries

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Amazon Customer
5.0 out of 5 stars useful for parents and teachers
Reviewed in India on July 27, 2021
Good for education
David Badke
5.0 out of 5 stars Should be required reading
Reviewed in Canada on November 1, 2018
If you have any interest in autism, you should read this book. It is a carefully researched history of society's attitudes toward autism, from its earliest identification in the 1940s to around 2013. Through the stories of parents with autistic children, scientists and activists, and some of those with autism themselves, the authors reveal how attitudes changed over the years, from blaming mothers for their children's autism to a recognition of the organic causes of the disorder. The heroes - and villains - of the story are well profiled. This is not a medical or scientific study of autism, it is history, and as such provides excellent background to autism and its many puzzles. Highly recommended.
Jim
5.0 out of 5 stars A good resource and a great read
Reviewed in the United Kingdom on November 16, 2016
Well researched, well written and all in all a bit of a page-turner. The work provides a human perspective to the study of Autism in a historical context. Some of the material is uncomfortable to deal with - particularly society's attitudes through time- but overall a good resources and a great read.
BC
5.0 out of 5 stars Le meilleur livre sur le sujet
Reviewed in France on September 29, 2016
Le livre le plus complet qui existe sur le sujet. Ecrit par des journalistes, la science y est absolument complete. Mon seul reproche y est le passage sur le patriot act, qui me semble un peu faible (il y a des source comme pour tout le reste du livre mais elles ne sont pas simples d'acces). Mais ca reste un ouvrage indispensable. Bravo aux journalistes. Vraiment, bravo.
Paula Ayub
5.0 out of 5 stars A história sobre o autismo
Reviewed in Brazil on January 30, 2016
Rever a história do autismo nos faz refletir sobre o que houve de riqueza e que foi deixado para trás sob a luz da tecnologia.
Não podemos deixar de OUVIR nossas crianças.