The list author says: "Hi, I have severe Myalgic Encephalomyelitis and have done for the last 14 years.
This is a list of just some of the good M.E. books available, and I've also included some warnings about some of the worst ones!
Note: M.E. and CFS are not the same and none of the definitions of CFS defines M.E., or any other distinct disease.
The reason for this is that despite the fact that the new name and definition of CFS were created in a response to an outbreak of what was unmistakably M.E., this new name and definition did not describe the known signs, symptoms, history and pathology of M.E. It described a disease process which did not, and could not exist.
Unfortunately, a small amount of good information on M.E. has been created using the terms 'CFS' or 'CFIDS.' The vast majority of 'CFS' information is irrelevant to M.E., but in a small minority of cases, it is relevant to M.E., or at least partly so. Having said that, all of the information about M.E. that uses the term 'CFS' is tainted in some way by 'CFS' propaganda and is sadly an unscientific mix of facts about M.E. and 'CFS.'
Please see the Hummingbirds' Foundation for M.E. website for more information about the vast difference between M.E. and 'CFS,' why nobody should accept a 'CFS' (mis)diagnosis, and why 'CFS' (and the equally unhelpful concepts of 'ME/CFS' 'CFIDS' and 'CFS/ME' etc.)must be abandoned for the benefit of every patient group involved.
Knowledge is power. Happy reading!
ps. There is also a second book list 'Myalgic Encephalomyelitis (and 'CFS') Health Improving Books 2012'
Jodi Bassett, from the Hummingbirds' Foundation for M.E."
"A great book back in the day, but now mostly outdated. Also contains perhaps 25% poor quality 'CFS' misinformation. Worth a read in parts, but so much of the content I would now disagree with and worry about it causing harm, especially for newbies."
"This book (though very problematic politically) really gives you an understanding of how and why ME has been stigmatized, ridiculed and ignored as much as it has, and how the whole 'CFS' disaster started. Not essential but interesting."
"A book of poetry by Peggy Munson, author of 'Stricken' - some of which expresses what it is like to live with severe Myalgic Encephalomyelitis. It has had some really wonderful reviews too. Peggy Mumson is immensely talented."
"Dr Ramsay studied M.E. for more than 30 years (This book is about M.E. and how it is NOT a 'postviral fatigue syndrome' despite what the title here says!). This book shows what a scam CFS was from the start and how much was known about M.E. even before CFS was created in 1988. M.E. was never medically unexplained!"
"Same as the previous two. This time however, Skloot's illness barely gets a mention (as he has decided to stop writing about it at this time, for reasons explained in the book). If you liked his previous two books however (as I did), then this is another great read."
"The only novel I know of written with a main character who has ME, and severe ME at that! The book is told from Longden's point of view and based on his own life experiences. Compelling. (I liked it a lot, but I must admit the family members of mine that read it found it really depressing.)"
"This is a fantastic book (although not without some serious omissions, problematic statements and a terribly inaccurate use of terminology in parts). Lots of interesting info particularly on how severe ME can be. A worthwhile read."
"Interesting reading for anyone with an interest in M.E. (which Bruno unfortunately and BIZARRELY refers to as 'chronic fatigue!' SIGH). The section on M.E. is very small however, so this isn't a must-have M.E. book, although M.E. is undoubtedly linked to Polio."
"The subsuming of the distinct neurological disease M.E. under various categories of Âunexplained fatigueÂ or CFS exist purely to serve the interests of various extremely powerful corporations, and government departments. Read this book if you have any doubt corporations or goverments could be this amoral or uncaring."
"This book reinforces almost every myth about ME (or 'CFS') and is extremely dangerous, as it contradicts this by also including some real information as well; making the bad information sound more plausable to the uninitiated."
"This 'chronic fatigue' book reinforces almost every myth about 'CFS' and contains almost no real information either for M.E. patinets or those misdiagnosed with CFS who don't have M.E. It's just so awful - the name says it all. Treating people with many different illnesses as if they were a homogenous group is unscientific and unethical and not going to benefit any of them."
"This book means well, but reinforces all the misinformation spread about 'CFS' by people like the CDC etc. Almost all of the medical information here is outdated, and irrelevant to those with actual M.E."
"Like her first book, this book does not distinguish adequately, or at all, between fatiguing illnesses and M.E. Ridiculous and unscientific claims are also made about Fibromyalgia being basically the same as 'CFS.' This book also very clearly means well, but is not a good source of reliable medical information."