Enter your mobile number or email address below and we'll send you a link to download the free Kindle App. Then you can start reading Kindle books on your smartphone, tablet, or computer - no Kindle device required.
To get the free app, enter your mobile phone number.
living with Periodic Paralysis: The Mystery Unraveled Paperback – May 9, 2013
|New from||Used from|
Frequently bought together
Customers who viewed this item also viewed
Customers who bought this item also bought
About the Author
Susan earned B.S. degrees in Psychology and Special Education at the University of Utah and spent many years as a teacher and case manager working with children and adults with disabilities. Calvin earned B.S. degrees in Behavioral Science and Psychology at Westminster College and the University of Utah. He also holds an M.Ed. degree in Special Education and M.S. degree in Information Technology from the University of Utah and Capella University. Calvin worked in a variety of fields including teaching, corrections and case management.
Top customer reviews
There was a problem filtering reviews right now. Please try again later.
For years, I've wanted to know how to do the most basic things around the house, and no one gave me any ideas. Like what do I do for safety when I have less than 5 minutes before my legs are paralyzed? You can feel isolated because it seems only my body does these crazy things. Like violent reactions to ever med you try. This book gave me specific things to talk to my doctors about and they listened. Often they told me they have never learned how to treat this, but they were willing to try. In addition to this book, is their Face Book group from people around the world. It's so nice to feel understood & not alone. Between the book and their group, I learned more in 2 weeks then in the last 20 years! Recently I asked the group how they prepared for a trip, and was given many great suggestions that helped me make it. Normally just around town is really hard.
Another thing I've learned is that we can all manifest slightly different. I have a lot more trouble than many with alkalosis and needing salt badly. I recently discovered Gitelman's manifests very similar to periodic paralysis, except it also has alkalosis and salt cravings. It is treated pretty much the same. I'm currently in the process of paperwork to get the Gitelman DNA test done. Even if I test Gitelman instead of Periodic Paralysis, I've been told I'm welcome to remain with the list because the symptoms and treatments are the same. I tell my doctors ideas I get for natural ways to treat various symptoms. Ideas I got from the book and the group. My doctors have been thrilled with the results. They've also said what I do now they feel is very safe, I've had labs done & they told me to keep doing more. For now it's in my charts that I have an electrolyte disorder, alkalosis and hypokalemia. This book has really changed and improved my life! It talked about things I'd never heard of or tried before. Like that I've been plagued with complicated migraines since I was young, but now I rarely get them, because I can fight them by balancing my electrolytes. The first concept I got from the book was "balance" in literally everything. Also the book gave me examples and specific things I could talk to my doctors about. then we looked to see how it applied to me. This book really helps with the day to day living and functioning too, the subjects I've been searching for, for years.
As sad as it was to read Susan's story, it was clear that she pioneered the way for the rest of us.
We felt less alone. We felt empowered. We liked the way she encouraged us to find our own answers and to trudge forward through all of the disappointing doctor visits.
The information was cited, which can be very helpful when trying to do your own research. There were tips, lists, and stories that helped us make up our own diagnosis plan. We ended up, as the book warned us, needing to figure it all out for ourselves and then present our case to the doctors.
Without this book and the online sources we found, the doctor would have said the symptoms were all psychological. (That was what he said from the start.) Now we know that none of the symptoms are psychological, as they can all be fixed with potassium!